It’s a never-ending cycle, I might get a few days where I feel okay (because feeling GOOD is a rare day indeed), but most days I wake up and by the time I get to the coffee machine, I say to myself, “I feel like shit. I’m tired of feeling this way. I’m sick of being sick.” Almost every single day I utter these phrases. I used to wake up and say, “I feel like shit.” My hubby pointed out, “but you say that every day.” Does he become immune to my constant utterance of “I’m sick of being sick of being tired …” each and every day? Do I become complacent with feeling this way?
In a sense, I think some of that is true for both of us. While my dear hubby is a super compassionate person, and he certainly tries to be compassionate about my never-ending pain cycle, he certainly doesn’t KNOW my pain. I don’t want him to know it. I have almost accepted that this is my way of life. I’m going to wake up most days and feel like shit. That’s just my life.
As I’ve mentioned in previous posts, I’ve joined pain/fibromyalgia forums on Facebook, and I get depressed reading about other people’s depression, and how they feel like shit, and about how badly they’re treated at pain doctors, or rhematologists, or whatever doctor, when you’re not treated with compassion by your own doctor, face it, you are SCREWED. And sadly, most chronic pain patients are at the bad end of the shaft. From the doctor (“it’s all in your head,” “if you weren’t fat you wouldn’t be in pain,”) to the pharmacist, the stories I have read horrify me. That’s what I face. I’ve already had my own terrible experience with my rhematologist, and instead of putting up with her cruel treatment, I fired her. It felt good to send a letter that I was no longer a patient! Now I have to wait until December to see a pain management doctor. In the meantime, it’s up to my primary physician. Will she give me another two prescriptions in the meantime for my pain pills? And oh my, since Hydrocodone is rescheduled, can we change it to something that might just kick my pain? I mean 5 mg. of hydrocodone just doesn’t kill the pain. It does make life more bearable, but not better.
Trust me, if I could choose between feeling good or taking pills? I’d go for the feeling good! Please don’t treat me like a drug addict. Just treat me with compassion.
Because I’m sick of being sick of being tired all the time.